Weston

Yesterday morning on Saturday the NICU called us in our room upstairs and told us that Weston's x rays were looking about the same but they were concerned because he had a large loop of air in his intestines that wasn't passing through. His stools were also hard. They decided to get him up to Primary Children's which has a level 4 NICU instead of a level 3 at IMC. The transportation team came down from Primary's and they decided to take him by ambulance rather than by helicopter because of the snow. He was transported up to Primary's and I was quickly discharged from the hospital so we could follow soon after. 

We got up there and they basically said he was sick enough that they needed to go in and find out why. They didn't know what they would find and the surgery could have lasted anywhere from an hour to over three. 

Here is an e-mail Ryan wrote to our family on Saturday (2/26/11).

Hi again everyone. They prepped Weston for surgery this afternoon and he went in right about 3 pm here. Surgery took about an hour and forty minutes and then Dr. Black, who performed the surgery, came and talked to us. The news was in between really bad and good. They had to remove about 75% of his small intestine as it was completely dead tissue. The fortunate part is if he had no small intestine left they couldn't have saved him at all. The doctor said he wished it had been the large intestine instead of small. The small is what absorbs all the nutrients, so not having it is very detrimental.
So now he basically has about 27 cm of small intestine, separated into 2 parts(most babies are born with 140 cm). As he grows the intestine will hopefully grow and keep up and eventually (most likely 2-3 months) they'll be able to fuse the small intestine back together. This doesn't mean he'll be able to eat normally after that.
For now they will feed him through an IV. In a few days they'll be able to put a "pick line" in him which will feed into his chest right near his heart. This tube will allow them to feed him more dense nutrients and give him medications and other things. They will feed him TPN, which is just liquid food that has everything he needs. His intestine will still have problems for a few years, maybe 3-5 years. We can't know for sure right now. It will take that much time for his intestine to grow enough to be able to digest the amount of food he's eating. This means he will be fed TPN for the first few years of his life.
So right now he has two holes in his stomach, each one is the end of the two small intestine endings inside. Over time they'll be able to remove spit and other things from the top hole that comes out. Eventually they might be able to feed him, it will come out the first hole and they'll transfer it down to the second hole so it can pass through the colon and large intestine. How awesome is that? This will be done just to keep his intestines healthy with things passing through them.
He still has an infection right now. We learned that he has e-coli in his blood. That's probably what started the whole chain of events. This will most likely get out of him in the next few days with antibiotics.
Long term Dr. Black said there's no reason to believe he won't be able to go to school when the time comes and run around and play like normal. He should be totally fine after a few years. So there is light at the end of the tunnel already, but we have a million obstacles to hurdle before that!
He also has a little bit of blood in the ventricles of his head. He's at a stage 2 (of 4) in that. They'll watch this closely, but as long as he stays stable post-surgery the risk of it progressing should go down. Stage 4 is bad, right now its ok and can completely correct itself. No blood in the brain yet.
Oh, by the way, this whole intestine problem is called "short gut syndrome". I did not make that up, that's actually what they call it :)
Ok, this email is long and a little scatter-brained. Just trying to remember all I know. That's it for now. We still trust that the Lord will continue to bless us. He already has with this. We know this is the Lord's will for us. I joked with Sarah that we're making up for our relatively easy lives up to this point! We've been so blessed and this will be a great challenge, but a great opportunity to learn and be humbled. We love you all and are thankful for the continued prayers.

-Ryan and Sarah

P.S. Carter is still fine. We went and saw him and he's as well as can be. They will still monitor him closely for any infection, but all is well.

Today we picked up my mom from the airport (thank goodness she is here) and went and saw Weston. He is doing as well as can be expected. His clotting factors may be getting a little better and they were able to wean him off the ventilator some throughout the night. 

We were also able to go to a sacrament meeting at the hospital. We weren't able to go to church last week and it was amazing how good it felt to be back. We feel so blessed and thankful that even though our little boy will have a very rough first few years of life, he can be healthy in the long run. Thank you for all the prayers.